When our son Jensen was diagnosed with Down syndrome (Ds), our first reaction was of sadness and disappointment. I remember finding out at work on a late Wednesday afternoon. I was 20 weeks pregnant and the doctor called me to tell me the results of my genetic testing. I quickly packed up my belongings, and left the building in tears. I didn’t go into work the following Thursday or Friday. Those first few days I was distraught and couldn’t stop crying.
When I look back at this time, I am trying to discern what exactly was at the root of these feelings.
If I’m being completely honest with myself, I have to say these feelings stemmed from the complete lack of information combined with a fear of the unknown. I also felt robbed of having a “normal” life. We had beliefs about what was normal and what wasn’t normal.
Continue reading “Changing Our Beliefs About Down Syndrome”
We are less than one month away from kicking off our 321 mile adventure! We will be hosting our kickoff event on World Down Syndrome Day, March 21st, with our partner, the Down Syndrome Guild of Southeast Michigan, at Drake Sports Park located in West Bloomfield, Michigan at 5:30 p.m.
I was 17 weeks pregnant with my first child when I received a call from my doctor’s colleague, Dr. London (my doctor was out of town). He told me very gently that my prenatal quad screening test came back with a 1 in 21 chance that my baby had Down syndrome (Ds), otherwise known as Trisomy 21. It felt like my world had come crashing down. My heart was beating fast and I started to shake. I tried not to let him hear me cry as I listened to what he had to tell me.
honoringjensen.com 