When our son Jensen was diagnosed with Down syndrome (Ds), our first reaction was of sadness and disappointment. I remember finding out at work on a late Wednesday afternoon. I was 20 weeks pregnant and the doctor called me to tell me the results of my genetic testing. I quickly packed up my belongings, and left the building in tears. I didn’t go into work the following Thursday or Friday. Those first few days I was distraught and couldn’t stop crying.
When I look back at this time, I am trying to discern what exactly was at the root of these feelings.
If I’m being completely honest with myself, I have to say these feelings stemmed from the complete lack of information combined with a fear of the unknown. I also felt robbed of having a “normal” life. We had beliefs about what was normal and what wasn’t normal. Continue reading “Changing Our Beliefs About Down Syndrome”
We are less than one month away from kicking off our 321 mile adventure! We will be hosting our kickoff event on World Down Syndrome Day, March 21st, with our partner, the Down Syndrome Guild of Southeast Michigan, at Drake Sports Park located in West Bloomfield, Michigan at 5:30 p.m.
And YOU are invited to join us! We will be walking two miles. Mile #1 will be for Parker – our first friend who allowed us to dedicate a mile to him! Mile #2 will be dedicated to Chelsea Werner, a 4X Special Olympics Champion & a 2 X World Champion.
I was 17 weeks pregnant with my first child when I received a call from my doctor’s colleague, Dr. London (my doctor was out of town). He told me very gently that my prenatal quad screening test came back with a 1 in 21 chance that my baby had Down syndrome (Ds), otherwise known as Trisomy 21. It felt like my world had come crashing down. My heart was beating fast and I started to shake. I tried not to let him hear me cry as I listened to what he had to tell me.
We are excited to introduce our 321 Miles for 321 Smiles project! On 3.21.2017, in recognition of World Down Syndrome Day, we will begin a 321 mile journey with a very special purpose – to promote awareness about Down syndrome (Ds). We are calling our journey 321 Miles for 321 Smiles!
We will be walking, hiking and/or running 321 miles. Each mile that we traverse will be dedicated to a person who has Down syndrome. Each individual with Down syndrome will have his/her photo featured on our blog along with the reasons that make him/her smile. Our goal is to show others that individuals with Down syndrome are more alike than different.
Our journey will take place over the course of three months (March 21,2017 – June 30, 2017) and we will be traversing many different areas over the great state of Michigan. Once we start our journey, we will post pictures of each mile that we walked on our blog and Facebook and dedicate it to a person with Down syndrome.
Go to our official 321 Miles for 321 Smiles page for details and information about how YOU can help! If you have a family member that you would like us to dedicate a mile to, please email us at firstname.lastname@example.org.
The Year 2016 is a paradox for us. It was the best year of our lives, and yet, it was the worst year of our lives.
It will forever be etched into the history book of life for Andy and I. It contains many life altering moments – good and bad. I find myself reliving these moments and reflecting on how very quickly your life can change.
When we entered 2016, I can honestly say I was the happiest I had been in my life. I was pregnant with our first child. I was going to be a mother and Andy was going to be a father. By Christmas, Andy and I would be a family of three with a beautiful baby. I was on top of the world; the prospects of the Year 2016 held unlimited happiness for us.
In this season of giving and thanks, we have done a lot of reflection on the importance of giving. Whether it is giving your time, your energy, your money, resources, or your presence to others. Or whether it is giving to family, friends, co-workers, a stranger, an organization, or even giving a new home to a rescue pet.
Hello. Thanks for reading our story. This blog is in honor of our baby boy, Jensen James.
We never expected to create a blog, let alone a blog about our baby who was taken far too soon. But, I have come to learn that life is full of the unexpected.
Our son Jensen was born on August 5th, 2016 and died 43 hours later. My pregnancy leading up to his birth was full of unexpected news, unexpected worries and an unexpected turn of events. The life that we are living now is an unexpected outcome, which has led to an unexpected beginning. Continue reading “The Unexpected Beginning”