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Changing Our Beliefs About Down Syndrome

When our son Jensen was diagnosed with Down syndrome (Ds), our first reaction was of sadness and disappointment.  I remember finding out at work on a late Wednesday afternoon. I was 20 weeks pregnant and the doctor called me to tell me the results of my genetic testing. I quickly packed up my belongings, and left the building in tears. I didn’t go into work the following Thursday or Friday.  Those first few days I was distraught and couldn’t stop crying.

When I look back at this time, I am trying to discern what exactly was at the root of these feelings.

If I’m being completely honest with myself, I have to say these feelings stemmed from the complete lack of information combined with a fear of the unknown.  I also felt robbed of having a “normal” life. We had beliefs about what was normal and what wasn’t normal.
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321 Miles for 321 Smiles Kickoff Event

321s4m_pngtransparent-1We are less than one month away from kicking off our 321 mile adventure!  We will be hosting our kickoff event on World Down Syndrome Day, March 21st, with our partner, the Down Syndrome Guild of Southeast Michigan, at Drake Sports Park located in West Bloomfield, Michigan at 5:30 p.m.

And YOU are invited to join us!  We will be walking two miles.  Mile #1 will be for Parker – our first friend who allowed us to dedicate a mile to him! Mile #2 will be dedicated to Chelsea Werner, a 4X Special Olympics Champion & a 2 X World Champion.

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The Power of Kindness

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I believe in the power of kindness.

Whether you are on the receiving end of a random act of kindness or you are a witness to it, it can inspire you to do the same for others, or it can simply help your own heart. Paying this type of behavior forward causes a ripple effect amongst our social networks, and across the world.

This may sound idealistic and lofty to some.  But I think it sounds lofty only because it is incredibly difficult to measure the impact that one an act of kindness has on a person and the ripple effect it can cause. It seems like an abstract idea. And it sort of is.  But what’s wrong with believing in the magic of kindness? Continue reading “The Power of Kindness”

The Daily Struggles of Living With Grief

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Grief – an exhausting, unwelcome beast of an emotion. But let’s be honest – it’s more than an emotion.  An emotion is something like feeling “sad” or “melancholy.”

Grief is something much more profound.  It’s something that never leaves you.  It is a soul-crushing, all-pervasive presence that sucks the life out of you. It is an unbearable pain that has the power to break your heart and take your life.  I mean this in the most figurative sense, but also in the literal sense (Google: Carrie Fisher and Debbie Reynolds).

Grief has now become a central part of who I am.  In fact, it is in control more times than not. I’m hoping some day in the future this won’t be the case, but for now, it is the case. And I live with it all day, every day –  day in and day out.

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The Support You Need Most Surrounding a Prenatal Down Syndrome Diagnosis

wp-1485129373120.pngI was 17 weeks pregnant with my first child when I received a call from my doctor’s colleague, Dr. London (my doctor was out of town).  He told me very gently that my prenatal quad screening test came back with a 1 in 21 chance that my baby had Down syndrome (Ds), otherwise known as Trisomy 21.  It felt like my world had come crashing down. My heart was beating fast and I started to shake.  I tried not to let him hear me cry as I listened to what he had to tell me.

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Announcing 321 Miles for 321 Smiles

donate-jensen2We are excited to introduce our 321 Miles for 321 Smiles project! On 3.21.2017, in recognition of World Down Syndrome Day, we will begin a 321 mile journey with a very special purpose –  to promote awareness about Down syndrome (Ds).  We are calling our journey 321 Miles for 321 Smiles!

We will be walking, hiking and/or running 321 miles.  Each mile that we traverse will be dedicated to a person who has Down syndrome. Each individual with Down syndrome will have his/her photo  featured on our blog along with the reasons that make him/her smile. Our goal is to show others that individuals with Down syndrome are more alike than different.

Our journey will take place over the course of three months (March 21,2017 – June 30, 2017) and we will be traversing many different areas over the great state of Michigan. Once we start our journey, we will post pictures of each mile that we walked on our blog and Facebook and dedicate it to a person with Down syndrome.

Go to our official 321 Miles for 321 Smiles page for details and information about how YOU can help!  If you have a family member that you would like us to dedicate a mile to, please email us at 321miles@honoringjensen.com.

Help get the word out! Share this post, or our promotional flyer.

A special thank you to our partner, the Down Syndrome Guild of Southeast Michigan.

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The Year 2016: A Tale of Two Years

The Year 2016 is a paradox for us. It was the best year of our lives, and yet, it was the worst year of our lives.

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It will forever be etched into the history book of life for Andy and I.  It contains many life altering moments – good and bad.  I find myself reliving these moments and reflecting on how very quickly your life can change.

When we entered 2016, I can honestly say I was the happiest I had been in my life. I was pregnant with our first child.  I was going to be a mother and Andy was going to be a father. By Christmas, Andy and I would be a family of three with a beautiful baby.  I was on top of the world; the prospects of the Year 2016 held unlimited happiness for us.

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As we exit 2016, that happiness is gone.

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